August 28, 2005
August 28, 2005 | Updates
Samuel slept OK last night. Part of the problem may have been that he took a nap from about 5:30 until 7 pm and then his night medications were due so he didn’t wake up between the nap and bedtime. They said he slept fine until about 11 pm and then he kept waking up every few hours, staying awake for about an hour and then falling back to sleep. I can’t complain too much about that though because it’s much better than him just being up most the night.This morning when we walked into the NTU I could hear Samuel crying from clear down the hallway. He was upset most of the morning despite several doses of clonadine. Tom finally suggested that he might be constipated. So he got the wonderful experience of a enema. He’s had them before (poor kid), but this one was different. They simply mixed molases and whole milk together for it. They said it irritates the bowels and the body starts pooring water into them to try and get the mixture out. That softens the stool and ta da! I’m sure that’s way more than you all wanted to know, but it worked and he was pretty much happier most of the afternoon.
One great thing he’s been doing today is moving his head on his own. I haven’t really seen him do that before except maybe once or twice. But he did it a ton today. And it was movements like trying to get away from mommy’s kisses or the bright light the nurse wanted to shine in his eyes. It was a strange sensation to be holding him and have him just turn his head. I’ve gotten used to it staying right where I put it.
He is also tracking things and focusing much better than before. The doctor this morning even mentioned how well he had looked at her and tracked her and she hadn’t seen that before. Of course, we’ve seen him do that before, but I can see a real difference today over the last nearly 6 weeks. It is VERY encouraging.
Tom, the boys & I all went to church on the 3rd floor of Primary Childrens’ Hospital today. It’s such a blessing to be able to go and take the sacrament each Sunday by just going up a flight of stairs. It’s “come as you are” services which is also a good thing since most people don’t really know ahead of time that they are going to be here or for how long. They always have a very nice service.
Last week at church they read the dedicatory prayer given for this hospital in 1990 by President Gordon B Hinckley. He blessed that it would be a place of healing, peace, refuge , learning and a place where the holy spirit would be felt. He blessed all those who would minister to the needs of the children. And then he said, “May thy spirit hover over this institution…now and through the years to come, for the blessing of many, to Thy name’s honor and glory.” That last sentence really struck me because I have felt the spirit more in this hospital in the last 6 weeks than I think I have in my entire life. It is so powerful here and brings such peace to all of us who are struggling through trials here. I even had a nurse tell me she had jokingly told her bishop she was changing religions to the Church of Jesus Christ of Latter Day Saints at Primary Childrens’ hospital because she has been so touched by the spirit here so many times.
The kids and Tom and I got to take Samuel for a walk today, and the kids were really cute to sit and talk to him. He seems to be interested in them being here with him. It will be nice to get him home where he AND I can see them more.
Thanks again to everyone. I just can’t say it enough. Keep him in your prayers. I am seeing improvements everyday - slow but sure. Sometimes that’s how God works. It’s definitely a trial of faith. So keep up the faith that he will get well.
Love,
Tom, Teresa, Samuel, Tanner, Wesley & Ben
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