September 15, 2005
September 15, 2005 | Updates
I’m afraid this is going to be a quick update since things have been a little hectic today. Samuel slept OK last night. He fell asleep as soon as we brought him in the house and he stayed asleep as we changed him and got him ready for bed. He slept until about 2 am when I gave him some abien and then until about 5 am. He fell back asleep around 7 am and slept until nearly 10 am. Not a very consistent night’s sleep, but at least we slept.There’s been a lot to do today as I started doing everything the nurses had been doing. I did a lot of it at the hospital, but I was surprised by how much I wasn’t doing. It is a lot of work. Just setting up his feedings 5 times a day takes some doing. And then there are about 10 different medications he is on and keeping track of those has been hard. Thank goodness the nurses made a great schedule for me to hang in his room.
We also tried to unpack all that we had brought from the hospital. We didn’t quite finish that, but will try to get it done tomorrow. The monitor we got for Samuel works great and relieves our minds so we can sleep. They also delivered an oxygen machine today so we don’t have to worry about running out of oxygen in the tanks.
Otherwise, it has been nice to be home with the boys and Tom. I can tell that Samuel is more comfortable here. He has been less agitated and more calm. Not to the extent I would have hoped for, but I can tell that he is happier here. He has also been really stable. He hasn’t thrown up or had drops in his oxygen or anything scary like that. He is doing REALLY well.
The only problem so far is my emotions. Everything here reminds me of Samuel and makes my heart ache for him to talk to me or come walking down the stairs or sit on the couch next to me. That has been really hard. Tanner told me it was really hard for him the first few days he was home. So I am hoping it will pass. I guess time will tell.
Thank you again to everyone who has helped us so much and continues to help us. We can never repay all that you’ve done and we could never have done this on our own. We love you all. Please keep praying that Samuel will stop posturing so he can start to relearn all that he has lost. I mostly pray for him to just be able to somehow interact with us and enjoy life. Thanks so much! Like I said, I know he is happier here. I can tell that he is much more calm.
Love,
Teresa, Tom & Boys
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