September 17, 2005
September 17, 2005 | Updates
Today was a nice slow Saturday - at least for me and Samuel. The boys and Tom got a lot of house work and yard work done. And Samuel and I enjoyed the day mostly indoors. Samuel was a bit more agitated today than he has been the last week or so. Tom and I had talked about seeing if we could reduce Samuel’s keppra slowly and see if it makes him more aware of things. We had discussed this with the doctors before leaving Primay Children’s and they had told us how to go about doing so. So this morning I gave Samuel 3/4 his regular dose of keppra. And like I said, Samuel was much more agitated all day long. I went back to his regular dose tonight and maybe we will try again in a few days.Samuel did spend some time today outside in his wheelchair and inside on the floor watching his brothers play. He has also taken time the last few days to see the horses and the dogs. He seems to be really interested in the horses, and not too excited about the dog, Chief, getting too close to him. I’ve also taken some time to let him taste some milk and applesauce in very small amounts just to continue trying to get him used to having things in his mouth.
He didn’t sleep well again last night, so I kept him up most of the day again. He was asleep tonight by 9 pm, so we will hope for a better night.
Overall, it’s wonderful being home. It’s so nice to see the boys and Tom. And it’s much better to see Samuel in his own room instead of in a hospital room. I think having his dad and brothers around is very good for him. And just simple things, like getting a glass of milk from the fridge, are wonderful for me. It’s so nice to not be eating hospital food anymore!
We still feel so strongly that Samuel is going to make a lot of improvements. But we also feel it is going to take a lot of time and hard work. I am looking into additional therapies that we can initiate on our own in addition to the therapies our insurance will help pay for. We just want to do all we can for him and feel that he needs a lot of stimulation in order for him to get well. But we don’t feel qualified to know what kind of stimulation is the best for him. So we are working on finding out.
Once again, thank you to EVERYONE! If I tried to list all those that have helped us, the list would be astounding and I would most certainly miss someone. Our motto lately, “The only thing worse than Samuel’s accident would be if something good didn’t come from it.” You are all ensuring that good things are coming from this trial. Thank you so much. You are teaching us by your examples. And we pray that you will each be richly blessed for all you have done for us.
We love you!
Love,
Teresa, Tom, Samuel & Boys
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