September 23, 2005

September 23, 2005 | Updates

Well, last night was the best night Samuel has probably ever had. Samuel fell asleep at 10 pm and didn’t wake up until 6:30 am. He did have to have ambien, tranxene and clonadine during the night. But he didn’t wake up during any of them. We will probably keep giving them during the night even if he doesn’t wake up for a while just to get him on a good schedule. Then we’ll try weaning him off some of the doses.Samuel is getting therapy at least 3 times a week and the up to 3 program hasn’t come to visit him yet. So I’m sure they will also come once a week or so.

Our night nurses are helping out greatly and making it so I am awake enough to do things with him during the day. He is definitely responsive to being moved or rubbed or picked up. He calms for thirty seconds or a few minutes when we do something he likes - like rub his hands or his feet or carry him around. He is also tracking things better and better each day. We are also working on getting him to eat on his own and I think he actually swallowed a bite of applesauce today. That’s at least a start.

Things are going to be slow and changes won’t happen everyday, so I’m thinking that I will probably start updating once a week instead of everyday. I will try to make that day Sunday since things should be slower then. So watch for the updates each Sunday and I’ll let you all know how things are going. If anything drastic happens on a different day, I’ll be sure to post earlier.

Thanks again to everyone. We are so blessed to have so much help and support. Some days are harder than others. But we’ve decided that we just have to accept that things will happen as they are supposed to and we need to be OK with that. Keep praying that Samuel will get well. He is young and VERY determined and we still believe great things will happen with him. But it is not going to be an overnight thing. It’s going to be long and hard and we’ll need your prayers through it all. Keep faith that God’s will is being done and that he keeps his promises and will bless Samuel through this.

Thanks!

Love,
Teresa, Tom, Samuel & Boys

Posted by admin @ 1:42 pm  

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