July 31, 2006
July 31, 2006 | Updates
This past week was pretty slow. We had to reauthorize Samuel for more home therapy visits around his birthday on July 17th. The insurance company agreed to do home therapy through mid-September. By then, Samuel will be in preschool and our insurance has asked us to move to outpatient therapy at that time. I have come to find out that the reason our insurance company has been so willing to work with us and provide home therapy for so long is because they knew I was pregnant and felt the best thing for Samuel, me and the baby to be would be to keep him in home therapy until things had settled a bit. I must say, I’m VERY impressed!However, our occupational therapist has been out of town since then and will not start coming again until tomorrow. And apparently the place that supplies our therapies didn’t request continuation of speech therapy and didn’t tell me that for nearly 10 days. Our speech therapist also did not return my calls during that time. But once I found out, a quick call to our insurance company and our speech therapist was able to start coming again today.
We did have Samuel’s IEP meeting for preschool that will begin this fall. He will go to the same school that Ben and Wesley attend. And he will basically go 4 days a week for 2 1/2 hours each day. There is a special bus that will pick him up and bring him home. I will be going with him the first few days to make sure he tolerates it well. If he doesn’t, then I can drive him everyday or we can cut back the number of days he attends. So we will see.
He will get 1 hour of speech therapy and 20 minutes of physical therapy each day at school. The rest of the time, he will spend in class with the other children singing, learning ABC’s, counting, coloring, etc. They have assured me they will have enough aides in the classroom so that Samuel will pretty well have 1 on 1 time the entire time he is there. We will see if they live up to that or not. Other good news is that our physical therapist is trying to get in with the school so that he will be the physical therapist there also. That would be a good thing since Samuel really likes him.
Still no seizures! Knock on wood! And smiles galore! Samuel is getting more and more ticklish and will laugh a little when tickled. He is really working at using his legs. I just wish we could get his arms going too. His arms work great out to the side of him, but they don’t like to come midline (in front of him). So it is difficult to do many things we would like him to do. His head control is SLOWLY getting better. And he seems to be making more and more sounds with his voice. This week, we will reduce his baclofen again and schedule more HBOT in the coming weeks. It’s been nearly 2 months since our last sessions. Oh, and he is nearly totally off tranxene with hardly any upset over it. (That saves me one time of getting up during the night to give him his 6 am dose!)
Well, that’s about it for this week. You know the other day, I was having a crazy day filled with the 3 P’s (pee, poop & puke!) and as I was running around the house, I thought to myself “everything is honkey dorey”! Then I turned around and looked at Samuel and he gave me the biggest smile and I said to myself, “and THAT is why!” His smile has always made my day. I’m just so grateful to have so many of them each and every day!
God is good!
Love,
The Jewkes
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