March 25, 2007
March 25, 2007 | Updates
Another week, not too much news. Samuel had speech therapy and physical therapy. We think the reason he isn’t crawling yet is because he rolls over so easily that he doesn’t have enough time on his stomach to get into the “groove” of it. So, we’re working on fixing that. Our speech therapist is also looking for some help from USU because he hasn’t ever encountered a child like Samuel and isn’t quite sure what to do. Hopefully, someone there has some ideas for him.We went down just 30 micrograms on his baclofen pump and he handled it very well. We will go back down to Primary’s this week to decrease it a little again. I am also getting set to schedule more hyperbaric treatments since I am seeing more tone in Samuel and want to keep it under control. Right now, his left leg is just tighter than it has been. It doesn’t concern me because he still bends it plenty and he has great range in it. It is just harder for us to bend it once he straightens it. It’s hard to explain. It’s almost like he is just stronger so once he has it straight, good luck bending it until he decides to do it. But I can tell it is caused by increase in his tone.
He is also pulling to the right more often than he was and that concerns me for his back. But he is still plenty flexible to the left, so I will just watch it closely. We just want to find the right balance so that his tone is not hurting him, but he has function. With too much baclofen, he can’t do anything. But he also has less tone with more baclofen, so it is a balancing act.
On the good side, he is getting better and better control of his trunk and head as we come down farther and farther.
The only other real news is they got him a walker at school so he can be in it during recess. I haven’t seen it yet, but I’m sure he will like that. That is one thing I always hated was seeing him laying on the floor or sitting in his wheelchair during recess. It just feels like kids should be running around then. Well, now he can in his own way!
Oh, yea, he finally stayed awake all the way home one day from school, so now he knows that the bus brings him home. I wondered if he had any idea :).
Still working on the website. It’s coming, though. And fundraisers. They’re coming also. And I’m trying to decide on what things I want to pursue first, because there are so many things out there I would like to try, but we are limited by time and money, so we shall see what I decide on.
Thanks so much for all your prayers. Please continue praying…
Love,
The Jewkes
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