Stressing over the g-tube surgery…
October 28, 2007 | Updates
Just a quick update. We had Samuel’s pump refill about 10 days ago and reduced Samuel’s baclofen again. However, we haven’t been back because a few days later, he and Nathan picked up a cold. He’s now been battling that cold for a week. He seems to be handling it fine and still sleeps well, but he is congested and not very happy so I know he isn’t feeling well. Samuel had to miss nearly everyday of school last week because of the cold. He has a nasty sounding cough, so we will wait a few more days and if it isn’t gone, we’ll go in to see if he has an ear infection or a sore throat. Nathan has the same cold and he is still sick, so I’m thinking it’s just a cold that takes a while to get rid of. None of the rest of us have gotten it yet. Hopefully, we won’t.
Otherwise, not much to write. We have Samuel’s surgery for his g-tube scheduled for the 2nd week in November. It requires an overnight stay which are bad words at our house. After they told me that, I couldn’t sleep for 3 nights. Crazy how much I hate the hospital now. But I shouldn’t be complaining. I’m sure Samuel hates it more. But I am hoping that the g-tube will be a much better solution for him than the tube in his nose. It’s crazy how you start second guessing yourself just as soon as you’ve made up your mind. I guess any surgery is scary and that is probably the whole problem right there.
It’s UEA and Halloween this week, so we should be pretty busy. We haven’t gone to any more pump reductions because Samuel has been sick and he still seems to be struggling from the last one. Hopefully we can go again soon. But the goal is to get his pump reduced without increasing his tone. If that can’t be done, then the pump is helping him. So, we’ll just have to hold off and see how things go.
Oh, yea, we got our passports on Friday. Pretty quick, huh?
Thanks for all the prayers. Please pray that Samuel will get over his cold soon.
Thanks,
The Jewkes
RSS feed for comments on this post.
TrackBack URI
October 29th, 2007 at 5:31 am, Caradie & Corbin Says:
Teresa,
I know you are worried about the hospital stay for the g-tube placement but it will be well worth it in the end I promise.
Caradie
October 29th, 2007 at 11:43 pm, Natalie Says:
Hey, girl! Good luck with the g-tube surgery. It will be a great stress reliever for ya. They don’t come out near as often as ng’s do! I know you’re nervous about another surgery–it is always a scary thing. Especially when you are well versed in all the possible things that can happen. We will all say a prayer for all of you. Let me know if you have any questions of just need to chat or whatever. Love ya!
November 1st, 2007 at 1:08 am, Sue Searles Says:
I know just how you feel about Hospital stays, or just going to one for that matter. I will be praying that you will have a peace from God about your upcoming visit and that everything will more smoothly than you can imagine.
Thank you for writing an e-mail, it was good to hear from you.
I’m praying right now for Samuel and Nathan to both feel better and praying that the rest of the family won’t come down with this miserable cold.
Love in Christ,
Sue