Feeling better and off on an adventure.
April 5, 2008 | Updates
Well, we’re feeling better. By last Saturday, I couldn’t stand being in the house anymore and wasn’t sick to my stomach anymore, so we headed to see Horton Hears a Who - Weston, Ben, Samuel, Nathan and I. Everyone was good except for Samuel. He just could not hold still. He kept up that crazy wiggly mood until the next Wednesday morning. I need to video tape it one day when he’s like that because it’s hard to explain. He is just off the wall wiggly - arms flying, legs flying, rolling, swinging eveything. Pretty much he could knock any of us out with one just one flying limb and he has four! Here’s to hoping there is a lot of progress before he’s a teenager or he will knock us out!
The rest of the week, Samuel has been back to his normal self. I don’t know if it was the flu that he had or if it was just the tail end of his head cold. I’m guessing the flu. He sat with me one night and I had to hang on for dear life to get him to hold still. But within a few minutes, he was sound asleep. I know he just didn’t feel right. And when his teacher at school asked Ben how Samuel was, Ben said something like, “He has a fever and he is crazy wiggly!” Samuel’s teacher said his eyes got huge as he said it. Well, I guess that’s about the best explanation I’ve heard.
The big news is it looks like we are FINALLY going to ABR therapy. It’s a therapy that requires us to be there for about 9 days while they teach us the techniques and then we will come home and do the therapy with Samuel ourselves each day. I’m excited to see how it helps him. I’ve been researching it for over a year and parents are seeing good results with their kids. But it is going to make for quite the adventure for us. We will have to fly clear across the United States. So, it will be an 6 hour flight each way with the layovers and all. And then we will have to drive to the therapy from there. We will stay for 9 days and head back. The difficult thing, though, is that the trip will be just Samuel and I. I would love to take someone else, but the cost of the flight would just be too much and I think we can manage on our own.
Oh, yea, that reminds me that they are opening up a hyperbaric clinic this month in Logan. And it is a clinic that will take brain injured children. How awesome is that? The down side (and it’s a pretty big down side) is that each treatment will be $225 for self-pay clients. That’s not feasible for us. But I’m hoping we can get our insurance to pay for them. It’s a really long shot, but at this point it’s worth it. We have seen so many good changes in Samuel from hyperbarics, that we would love to do more treatments. Hopefully, our insurance will agree. But I am absolutely certain it won’t come without a fight.
So, that’s the gist of things for now. We’ll be busy the next several weeks preparing for the trip. I’ll keep you updated as much as I can. I’m leaving you with a picture of Samuel on Easter and one of Nathan sharing kisses. Enjoy!
Love,
The Jewkes
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April 7th, 2008 at 7:37 pm, Joyce Weister Says:
HELLO PRECIOUS FAMILY. I CAN’T BELIEVE I HAVE NOT STOPPED BY SINCE DECEMBER. I AM SORRY, BUT PLEASE KNOW LITTLE SAMUEL AND YOUR FAMILY IS IMPORTANT AND SPECIAL TO ME AND ARE ALWAYS IN MY THOUGHTS AND PRAYERS. THANK YOU FOR THE E-MAIL INVITING ME TO YOUR WEBSITE. MAY I SHARE SAMUELS WEBSITE ON MY CAREPAGE SO MY PRAYER WARRIORS CAN COME VISIT AND PRAYER? GIVE SAMUEL AND THE KIDS A BIG HUG FOR ME. GOD BLESS YOUR FAMILY. GOD LOVES YOU AND I LOVE YOU. JOYCE WEISTER
CP:CarePageforPrayer
I ENJOYED YOUR WEBSITE. WHAT A BEAUTIFUL SMILE PRECIOUS SAMUEL HAS. NATHAN SURE IS A CUTIE AND I LOVED THOSE KISSES. I HOPE YOU CAN GO TO THAT PLACE IN CANADA AND IT HELPS SAMUEL. PLEASE LER ME KNOW IF I CAN SHARE YOUR WEBSITE. THANKS. LOVE AND HUGS, JOYCE
April 7th, 2008 at 7:40 pm, Joyce Weister Says:
YOUR FAMILY IS IN MY THOUGHTS AND PRAYERS. I AM PRAYING FOR A MIRACLE FOR SAMUEL. GOD BLESS YOUR FAMILY. LOTS OF LOVE, HUGS AND PRAYERS, JOYCE WEISTER
April 7th, 2008 at 10:06 pm, Natalie Says:
What sweet pics! I am loving those smiles. What a great post. I am going to see what sort of fund the old man wants to pony up for the fund for Samuel! I totally want to help! That is so exciting you are getting close to receiving this help. I am so excited for all the new things you are finding for him to help him continue to progress. You are such a wonderful mother! Thanks for the great post and I’ll be emptying the pocketbook soon!
(and never feel bad that you ‘ask’ for money. we all want to help in any way that we can and for us that don’t live close by, money can serve that purpose! We love you guys.)
Natalie