A Busy Month…
June 22, 2008 | Updates
Lots to write about! I guess I shouldn’t wait so long to post. And, I have a few pictures this time. Because of the length of this post, I’m going to break it into two. The first one I’ll post today and the next one in a few days.
Nathan’s party was fun. He got some cute clothes, some toys for his sandbox and for the bathtub, a big truck, some golf clubs and a wagon. He was pretty excited about it all and absolutely loved the cake. Below are a few pictures of his party, his wagon and him blowing out the candles. It’s cute because when he blows, he blows up and you can see his hair flying! He has his life jacket on because he’d been outside playing right before we had the cake and we hadn’t taken it off yet. I know some of you think I’m crazy, but I don’t care. I think he’s ADORABLE in his lifejacket :)!
Samuel’s nutrition analysis went really well. They said his diet looks good and he was back up to 34 lbs which is 90% of where his weight should be for his height. He is still only in the 10th percentile on the charts for weight and height, but at least he is on the charts. I had a long talk with the resident there because she was really interested in why Samuel didn’t have the tone that normally comes with cerebral palsy. I told her all about hyperbarics and she seemed really interested. So, it was a good appointment.
Father’s Day was a bit crazy since I thought stake conference was at 1 pm, but found out at 9:15 am that it started at 10 am and was 20 minutes from our house. We made it there just as they were singing the opening song. But within 15 minutes, I could tell Samuel wasn’t going to be happy sitting in his chair. He also wouldn’t sit on my lap. I took him outside and quickly realized that he was in pain. I thought back to changing his diaper that morning and realized it hadn’t been wet. It has been a long time since I had to cathe him, but it was apparent I would need to. I drove home and tried to cathe him for nearly an hour. It simply wouldn’t work. And now he was screaming from the pain of a full bladder. I then had to take him back to the church to pick up the rest of my family. When we got home, I tried again. An hour later, out of desperation, I gave him enough medication to put him to sleep. By 3 pm, I had finally drained his bladder. It had been a rough day with a lot of tears on both his part and mine. I just don’t handle seeing him in pain well anymore. I guess I’ve just seen too much of it. The rest of the day was nice, though, and I think Tom had at least an OK Father’s Day.
Samuel’s NACD appointment was a few days later. I noticed that morning that he also wasn’t wet and was worried about it. On the way to Ogden, Samuel started crying and I knew it was his full bladder again. But this time, after about 15 minutes of crying, he calmed down. When we got to the appointment, I changed his diaper but it was only slightly wet. And he started getting upset again like his bladder was full again and starting to hurt. But not 5 minutes later, he soaked another diaper and all was well. Thank heavens!
The NACD appointment went well. They were very good to listen to all I had to say and come up with some good suggestions. They were also very good when I told them we would be taking a break for a while. They were very supportive and I was so grateful for that. It’s always scary to tell someone who you figure is engrained in what they know that you are going to try something different. Most times, they really fight your new idea. But sometimes, you get surprised and they not only understand your position, but are willing to support you in it. Thank you NACD for being supportive! It’s so important to us!
To Be Continued…
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