We’re Home
September 26, 2008 | Updates
We spoke to the doctors yesterday morning and they agreed that we could come home and work on adjusting meds here. We made it home about 5 pm last night. Samuel was smiling when I put him in the car and again when we walked in the house. I’m so sure he knows what’s going on and wanted to come home as well. He wasn’t in a great mood the rest of the night though although he was having less seizures.
This morning, he woke up and was again not in the greatest of moods. However, he hasn’t had near as many seizures today and is much more aware. Trouble is that he is only happy when we’re leaving him alone. Any touching or working with him and he gets upset. I’m hoping that it’s due to the fact that he appears to have the cold that I’ve been battling all week. The only other option would be that the Keppra is making him in a foul mood. Let’s hope it’s the cold. We’ll give him until Monday and see if it goes away. If so, I think we’ll be on the right track and on to “normal” again. Otherwise, it will be a long quest to find a new drug that doesn’t make him irritable.
It’s good to be home. I REALLY missed the boys! Thanks to everyone who called and emailed about Samuel. Let’s hope things settle right down within a few days.
Love,
The Jewkes
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September 26th, 2008 at 7:47 pm, Susan Randt Says:
KNOW THAT YOU ARE ALL IN OUR HEARTS, THOUGHTS AND PRAYERS.
LOVE AND HUGS, SUSAN
ALSO: WWW.CAREPAGES.COM; VISIT - ZAKSANGELS
September 27th, 2008 at 1:03 am, Suzi Searles Says:
I’m so glad to hear that you are home again. I will be praying that Samuel will become less irritable and that you will be able to get the medication working just right for his needs.
Suzi Searles
September 27th, 2008 at 7:36 am, Caradie & Corbin Says:
Sorry I missed that you guys were in the hospital. I know you will figure things out for Samuel. You are an awesome mom so it shouldn’t be a problem.
Corb to, is having problems since his surgery. I have brought him to the doctor twice & they say it’s nothing, but then last night he was up almost all night VERY fussy. UGH!!!
Being a mom is hard enough let alone when our sweet kids can’t tell us whats the matter.
Caradie & Corbin
September 28th, 2008 at 9:34 am, Tammy and Parker Says:
I’m so thrilled to read that you guys are home again. Parker is always very grouchy when he gets home too. I think it is his way of letting me know that he wasn’t too pleased that I took him up in the first place.
We love you guys!
September 28th, 2008 at 4:41 pm, Jon and Kaye Neves Says:
Good to hear that you are home. Your sweet family is always in our prayers. Samuel is such an amazing young boy!! I was talking to a friend who has a 6 year old that when she was born experienced seizures all the time - she said normal was 25-40 a day. I can’t imagine… The sweet little girl doesn’t have seizures often, however, she is a little slow. My point is she said that she spent her nights searching the web for answers and hope - one website www.lahp.org has helped her. I thought I would share it with you. Let me know if it is helpful or if you have already gone there.
Much love to your family!!
September 28th, 2008 at 9:47 pm, Sharon Says:
Sorry you have been having so many problems. I got behind on my emails and am just catching up. I still stand in awe of all you do and how well you manage. Angels must surround you. We continure to pray for you and your family. Love or all of you!
September 28th, 2008 at 10:22 pm, Darlene Says:
Hi Jewkes,
Sorry! I didn’t know that Samuel was in the hospital. I am so glad to hear your back home and nestled in your own beds. I will pray that the med.perscribed will help with controlling his seizures. Samuel certainly is a gorgeous little boy,just precious. I think that the doctors need to stop and listen to what the parent(s)/patients are saying before they start jumping into conclusions(Just my opinion).
Take care of yourselves and please know that your family will always be in my thoughts and prayers.
October 1st, 2008 at 10:50 pm, Suzi Searles Says:
Just curious to know how things are going??
Suzi Searles
October 5th, 2008 at 3:39 am, Liz and Ashleigh Says:
Ashleigh just started on Keppra this week and she is on a 3 month gradual changeover from Epilim. One of the other Mums I know who has a child with mild cerebral palsy but no intellectual disability, is also on Keppra and she says whilst it is stopping the seizures she has noticed an increase in irritability and crankiness.
Liz