Still on the mend…
October 27, 2008 | Updates
I’ve sort of lost track of days here. I did talk to the neurology nurse the end of last week about Samuel’s constipation and she suggested a homemade enema. Tell you what, it worked. Some whole milk mixed with molasses and warmed up. I put linoleum on the floor in Samuel’s room on top of the carpet about a year ago to help give him more input when he’s on the floor. It’s ugly the way it’s duct taped to the floor. But everytime I think about pulling it up, I realize how happy I am that it’s there. So let’s just say that when that enema kicked in, Samuel’s diaper did no good and had it not been for the linoleum, we would have had to recarpet the room. Seriously!
Samuel wasn’t kicking and crying and hurting himself all weekend. Thank heavens! But, he was miserable. He just made this little whining noise all weekend and held onto that low grade fever that he’s had for a week now. He acted the same way he acts when his bladder is full which makes me think he had a stomach ache. He was also really congested and had me worried there. And, his seizures that keep him from sleeping came back. So, for 2 nights and days, he could only sleep about 3 minutes at a time. Ugh!
However, 2 nights ago I pulled out a big bean bag from the basement so I could sleep on the floor in his room. And last night, Samuel fell asleep on the bean bag with me and slept from 11 pm until about 1 pm today. And today, he is MUCH happier. He still isn’t completely back to normal, but he is closer than he’s been in nearly 2 months.
His little toe still looks so sad, but much better. His hands are healing right up. His tongue is healing, too. One entire side of it is bright red in a splotchy pattern where I am assuming he chewed the heck out of it. But it is looking better each day. I still am not getting the smiles I normally get from him, and that makes me sad. But I am NOT complaining because he is so much better than he has been and I’ll take a full night’s sleep any day! His oldest brother also has some sort of cold or flu and has been fighting stomach cramps for 2 days, so I’m sure that’s what Samuel is recovering from.
So, here’s to hoping things only go up from here! I’m a little leary to try another seizure med. (Ok, A LOT leary!) I’m looking into a diet change that may help. We’ll see. I’m just hoping we can get back on some sort of schedule. Hopefully, Samuel can go back to school this week. I think even he would like that :). And that might give me some sort of chance to catch up on work. But trying to cram the last 6 weeks of work into my schedule at any time is pretty much impossible. Oh, well. It all has to work out in the end, right?
Thanks for all your prayers. And, if you sent me an email and didn’t get a reply, it’s not because I didn’t send one. I usually send a reply to every email or comment, but I got so far behind these last few weeks and then my email was giving me issues and people have said they didn’t get a reply, so I don’t know how many went out and how many didn’t. Please don’t think it’s because I don’t care. I do!
Love,
The Jewkes
RSS feed for comments on this post.
TrackBack URI
October 28th, 2008 at 6:33 am, Cindy Says:
I got your reply, although it was not necessary! I just want you to know I am praying and thinking of you guy’s.
I am so glad you both got a good nights sleep! Bean bags are super cool! One day when I was little my big dog ate some of the lining on it and there were little balls EVERYWHERE!
Take care!
Cindy.
October 28th, 2008 at 9:38 pm, Darlene Says:
Hello Teresa,
I also got both of your replies,thank you. If you have the time to reply, then of course i love hearing from you. Just don’t worry about us tho, as we totally understand that your family will always be your first priority. As Cindy stated we just wanted you to know that we are thinking and praying for you. I was so happy to hear that Samuel is finally starting to feel a little more like himself. Just wish those s*** would take a hike so he could enjoy himself and bring out that beautiful smile of his. At least the good news is that your both getting some of your much needed rest back. I will be sure to say a prayer so that Tanner recovers quickly from his recent bout of illness.
Have a great Halloween week.~~~~~~~ Much love,Darlene
October 28th, 2008 at 10:08 pm, La Donna Says:
Hey, Teresa -
Speaking of diets and seizures and stuff - I JUST MOMENTS AGO stumbled across this site of a blogger who is starting a special diet for her kiddo who is seizing. You’ve researched so much, perhaps you are familiar w/ it - if not, here’s another research assignment for you!
Bless you - you & Samuel are in my prayers.
http://mamaterapeuta.wordpress.com/
Take care,
LD
October 31st, 2008 at 1:41 am, Suzi Searles Says:
Hoping and praying that all is going well and that you are finally getting caught up on your much missed sleep.
Just want to let you know that CALM, which is a powder form of Magnesium is a good thing for constipation, also for muscle relaxation. I give Luke a teaspoon every night and he has never really had any problems with constipation. I reluctantly tell you this because I know how overwhelming it can be to hear of all the suggestions about ways to improve our children’s lives.
Suzi Searles